Please or Register to create posts and topics.

What I Wish I Knew Before Becoming a Caregiver – Let’s Share Our Hard-Won Wisdom

Hi everyone,

I’ve been reflecting lately on how much I’ve learned—sometimes the hard way since stepping into the role of caregiver. From navigating medical appointments and medications to managing emotional burnout, this journey has been filled with both challenges and unexpected moments of beauty.

I realized how helpful it would’ve been to hear honest advice from someone who’s already walked this path. So I thought I’d start a thread where we can all share:

  • What do you wish someone had told you before you became a caregiver?

  • What’s the most important lesson you’ve learned?

  • What small tip, routine, mindset shift, or resource made a big difference for you?

  • If you could go back and comfort your just starting out self, what would you say?

Let’s create a space where new caregivers can find guidance, encouragement, and real-life advice from people who truly understand. Whether it’s practical tips or emotional insight, your story could be the lifeline someone else needs today.

Looking forward to learning from all of you,
Sydney

Hi Sydney,

Thank you so much for starting this thoughtful thread—what a beautiful and much-needed space you’ve opened up. I truly believe that if I had heard just a few of the things I know now back when I started caregiving, I would’ve felt a lot less alone and overwhelmed.

If I could go back and talk to myself at the very beginning, I would gently say: You don’t have to have it all figured out. It’s okay to feel scared, tired, and even resentful sometimes—it doesn’t make you a bad caregiver; it makes you human.

One of the biggest lessons I’ve learned is that you cannot pour from an empty cup. I used to put everything and everyone before myself, until I reached a point where I was so depleted, I couldn’t show up for my loved one the way I wanted to. Now, I try to make rest and mental space a non-negotiable part of my week—even if it’s just 10 quiet minutes with a cup of tea.

Also, I wish someone had told me how helpful it can be to build a care team—even if it’s informal. A friend to vent to, a neighbor who can sit with your loved one for a bit, or an online support group like this one... you don’t have to do this alone, even if it feels that way at times.

Thanks again for starting this conversation. I’m already learning from everyone’s stories, and I know so many new caregivers will too. 💛

With care,
Sophia

Hey Sydney,

Thank you for starting this thread—it truly resonates with me. As a caregiver myself, I can relate deeply to the ups and downs you mentioned. If there’s one thing I wish someone had told me earlier, it’s that it’s okay to ask for help. For a long time, I thought I had to carry everything on my own, and it took a toll on me emotionally and physically.

One small routine that’s helped me is journaling for just 5 minutes each night—it’s become a space to process the day and release tension. Also, creating a simple “go-to” list of medical info, meds, and emergency contacts has saved me more times than I can count.

If I could go back, I’d tell myself: You’re doing enough. You won’t always get it right, but your love and effort matter more than perfection.

Grateful to be part of a space like this where we can learn and grow together.